
The world’s most expensive medicine Zolgensma was administered to a kid from Hyderabad, who was suffering from a rare disease, known as Spinal Muscular Atrophy (SMA).
The three-year-old’s parents had to mobilise ₹16 crore through crowd-funding in a span of three-and-a-half months from 65,000 donors to buy Ayaansh’s medicine.
The medicine was imported from Novartis in USA. It had landed in Hyderabad on 8 June after the government waived the import duty and even exempted Goods and Services Tax (GST), both to the extent of ₹6 crore.
By 23 May, Ayaansh’s parents, Yogesh Gupta and Rupal Gupta, started the campaign to raise funds. They had mobilised ₹16 crore required from their donors, including Virat Kohli, Anushka Sharma, Emraan Hashmi, Dia Miza, Javeed Jaafri, Rajkumar Rao, Arjun Kapoor, and Sara Ali Khan.